I suck at this blogging thing.

Sorry that I haven't been keeping up on the blog. Its been mostly due to laziness on my part.  Its been a pretty good 2014 for us so far. A lot has happened since our last post.  Wyatt is now weighing in at 4 lbs 12 oz. He is working on feeding by mouth.  He can take 1/2 an oz by mouth 4 times per day. We have to keep him limited because of his ostomy bag. If we feed him too much too fast it will cause him to dump the food through too quickly and he wont absorb enough of the nutrients. He's still trying to figure it out. We have been dressing him at night since he graduated to crib. We do skin to skin during the day so he doesn't need the clothes to help keep him warm :).  We finally got him to latch and breastfeed a couple of times. Thats been really exciting for Heidi. He is also old enough now for  some toys.  They brought in a mobile on Friday and put it on his bed.

His Hematocrit has been really low (19%) It is supposed to be between 35-45%. Hematocrit shows your red blood cell count.  They gave him a DARBY shot which is supposed to help him jump start making more red blood cells but was not very effective for him. Thursday, they got more labs on him and it was very concerning for infection. Later in the day, we noticed that the skin around his mucous fistula ( where his re-feeding tube goes into his abdomen) looked pretty terrible.  The doctors did a whole septic workup on Wyatt to figure out what was going on. They had to take quite a bit of blood from him and decided to transfuse him again (transfusion #8) while they were at it. .  We woke up Friday morning and they told us that he tested positive for Staph, but they were doing cultures to determine if it was MRSA which is a very antibiotic resistant bacteria or the more easily treated MSSA.  Luckily it was MSSA. He was in a lot of pain though so Friday they had to give him a couple doses of Morphine to help him feel better and scheduled infusions of heavy antibiotics.

Wyatt has a schedule surgery date of  January 20th.  Heidi and I are really excited for his surgery because that will be a big step towards him coming home. At the same time we are terrified because it is major surgery and there are always risks. He will have to get the breathing tube and we wont be able to hold him for a while.

As far as him being able to come home, the doctors haven't even told us a timeline. It will all depend on how his surgery goes. We estimate it will be at least 2 more weeks after surgery if everything runs smoothly which seems like never happens in this place.

We love him more everyday. Thanks for all the thoughts and prayers. It helps.

Where his infection is located at. His refeeding tube goes in the corner of his incision here and you can see it is really infected and was really painful for Wyatt. 

First time using a bottle. Wasnt too sure about it at first, but does awesome with it now. 

We have to be sterile when we change out part of his lines which is why we have hair nets and masks.